Therapy at the Shepherd Center

I’ve done a few sessions of both Occupational and Physical Therapies thus far and both are going well. Time spent at the Shepherd Center is always time well spent.

Rebecca, my occupational therapist, works with me to improve and/or maintain the skills I need to function regularly everyday and as such, the care of the left arm and hand fall into the OT range. I don’t know that I really ever explained what has happened to my left arm…just like my left leg, it is spastic. The muscles used to open my left hand are tight and tense, hence the reason it always curls up and constantly looks like I’m forming a fist (the good news here is that it doesn’t lock up like that; it’s very pliant and I can manipulate it if I want). The same stands true for the muscles along the outer arm so the arm is hardly ever really straight and if I’m not focusing on it at all (or not holding the walker), it is almost always completely bent. Besides the normal exercises of moving something from one place to the next, which is so extremely frustrating when u have a “pok hand”, I have used the Functional Electrical Stimulation Bicycle. The bike works similarly to my bionic foot by stimulating the nerves in my hand and arm to encourage them to function normally. Rebecca placed electrodes on my wrists, forearms, biceps, triceps and the back of my shoulder blades, strapped my hand in place and as the bike started moving so did I to power it thru (pedalling with the left arm). I’m sure that I would not have lasted as long as I did without the stimulation and my movements would not have been as fluid. Shepherd Center offers membership in an MS Wellness program where one can go use the facility and all the equipment on a regular basis and I sure wish I can join to take advantage of everything they have to offer consistently but alas, it’s only available and staffed M-F 8-5, so while I may be able to make it work, it’ll take a Herculean effort of coordination etc to do so.

see my arm strapped in there
it’s in motion here

here’s a short clip of it in action:

IMG_4262

the other piece of equipment that I used (and already told u about) is the Bertec Balance Plate. I stand in front of an open dome if u will on a platform that has sensors to pick up how I’m standing to measure how balanced I am. Additionally, the inside of the dome is a screen on which moving lines, moving circles etc can be displayed. Is my weight distributed evenly between both legs? When the platform moves, how do I react to get back in balance? When the display changes, do I lose my balance and how quickly do I regain it? You get the picture…some of the exercises were easy enough to do and then there was this one below…lol. In the grand scheme of things, I didn’t do so terribly badly but  multitasking is when I tend to lose “form” and my reaction to things getting out of whack needs some work (it cemented one thing that I tell people all the time – I shouldn’t laugh and walk at the same time).

I wish I had some other pictures of the entire machine but say what.

The goal of that exercise was to keep that yellow star in the middle of the grocery aisle as I moved thru. Started off easy enough and then boxes started appeared in the aisle that I had to avoid hitting and wouldn’t u know it some of the boxes were moving side to side. When Joy, the PT asked me what dairy products I saw on the shelves, I said “wait? Wha???” Multitasking! Now I had to maintain my balance, lookout for and avoid hitting the boxes AND keep an eye out for dairy products? I told her that I think I’d seen a fish fly by! At some point the platform may have started moving too. I worked my ass off yesterday morning, no doubt.  In fact, it was funny because by the time I reached back home and throughout the day yesterday, I noticed that I really wasn’t keeping my balance very well but that was no surprise really, cuz those muscles put in some good work that morning.

Alright.  Well I gone so.  thanks for passing thru…as u were!

Physical Therapy at the Shepherd Center

After being on the waiting list since about May, I finally got the call that the Shepherd Center was ready for me and i started physical and occupational therapy three weeks ago. It’s going really well but lemme tell u, the shit wipes me out! I’ve been going every Wednesday at 1 and I’m done at 3, and yesterday was the first day that I actually stayed awake for the entire ride home. I am tired fuh so at the end of every session.

When I was diagnosed, I used to go to an arbitrary neurologist. A few years later, I’d started experiencing some things and and my manager at the time suggested that I reach out to the Multiple Sclerosis Society to ask them for a referral for an MS specific neurologist/facility. That’s how I found the MSCA and to this day, I think that her advice was some of the best I’ve received since starting my fight. I myself pass that same advice along to any newly diagnosed person with whom I’m in contact. Well I took that same advice last year when I found myself trying to start up physical therapy again.

Over the years, I’ve had 4 PTs including the 2 knucklehead “in-home” care therapists. Now, in their defence, there’s only so much u can do in someone’s home – ur hands are kinda tied based on the home setup…but barring that, I still maintain that they were still crazaos. But anyhoo, I digress. As far as the other two, I used to go to those facilities. I’m not discrediting everything they each did for me but the experience at the Shepherd Center is completely different. The Shepherd Center is a renowned spinal chord and brain injury rehabilitation facility here in the Atlanta area. The Andrew C. Carlos Multiple Sclerosis Institute resides within The Shepherd Center. I don’t know for sure, but I suspect that the majority of their patients have MS. The therapists focus solely on helping MS patients regain mobility, teaching them how to function as normally as possible given their restrictions and circumstances and showing them exercises that could strengthen and possibly retrain those muscles that just refuse to function how they’re supposed to. In a nutshell, their focus is ensuring that MS patients have the best quality of life possible.

And oh the toys! Apart from the standard gym machines, there are so many other machines and pieces of apparatus to help us walk, workout etc…it’s amazing. Now, I get that Shepherd center might be special with the availability of such things so boy am I happy that I am over there. In my next session, I’m supposed to use the AntiGravity Treadmill (AGT). It’s a big spaceship like looking thing but essentially when we go in, it’ll keep us up, so we don’t have to worry about falling or keeping balanced, we can just focus on working those legs as hard and fast as we want. I want to use it, but I’m afraid of how much I’ll push myself and how I’ll be able to function after the fact – nevertheless, I can wait to get in. I can’t even begin to describe what I used yesterday but let’s just say that I walked the fastest that I’ve ever had in a long time.  I even asked Ian if he wanted me to run…he said no. I often say that sometimes when it comes to my experiences and dealing with this disease, I’m too ambitious. Well this PT I have now is ambitious himself and when I told him that I miss my canes because eh no way a walker is cool, he jumped at the chance to let me walk with a cane. I haven’t done that since Novemberish 2015 so I could hardly contain my excitement – hey, it’s the little things! Now, if he didn’t have his stability belt around me, I woulda buss my ass a few times well, and my technique was rhell rusty but it felt so good!

Walkers – who needs ’em…
SIGH!

Stay tuned for next week’s story of the AGT…

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