Disabled in Trinidad

I’m here, I’m here…I really am!

I went home for carnival this year. Back in 2021, I decided that that there was no way that I was going to miss the first carnival after a 2-year hiatus because of the ‘vid. I’m sure that my friends got tired of hearing me explain that I just knew that Trinidad, the land mass, was going to sink because of how many people were going to be on it and if Trinidad was going down, I had to be there to go down with it! I was there for 2 weeks from the middle of February and oh what a time!

I’ve been going home during all stages of my disability, and I always have to do my due diligence w.r.t. where I can go, what I can comfortably do etc. – I love my country, I love going home but it really is not an ideal place for a handicapped person. I was also home in 2020 for carnival and that schedule of fetes plus J’ouvert worked so I figured that I’d stick with the same this time around too. One of the fetes was going to be a new experience but ‘Jel told me that it was held in the stadium, so I knew that was okay because the stadium is flat. Now, I have to admit that the wheelchair service and accommodations in Piarco, the airport, are second to none in my opinion; at least I’ve never had a bad experience. In fact, when I travel within the states, I’m on my own the entire time (from the time I enter the airport to the time I leave the next airport – don’t get me wrong, it suits me just fine) and I’m never escorted anywhere. In those instances, if I need help, it’s actually easier and makes more sense to ask another passenger than the wheelchair people. In Piarco, I’m put in a wheelchair when I arrive, and they send my scooter to baggage claim so I’m with someone at all times and I eh go lie, it really helps going thru the entire arrival process after flying internationally. It’s a BESS experience. When you leave the Piarco walls, however, all bets are off.

When I was growing up, I took taxis or maxitaxis whenever I needed to use public transportation. Luckily for me these days, there are many other options so most times in recent years, I’ve hired drivers to get where I needed to be. This year, the person was a friend of the family, so he had somewhat of an idea of what he’d have to deal with beforehand (we’d never met but my mother gave him the rundown). I must say though that I’ve never had a bad experience with anyone I’d used prior…I always tell them at the time we discuss where I’m going etc. and everyone has been helpful and cool about having to haul the scooter in and out their cars. I haven’t used the Trini version of Uber yet although apparently, one big difference is that riders do not see the make/model of the car in the app. I believe that after you are paired with a driver, they call to give you that information which means that if I ever use it, I need to be with someone who lives there because I may not recognise the make of the car to make a judgment call about whether the scooter will fit in the trunk. All in all, small ting!

The first few times I went down with my scooter, a lot of people stared at me like I was an extra-terrestrial being. I mean STARE and STARE HARD. I remember one time there were people looking, staring, bending the corner to look and see what I was doing. It never bothered me, I never felt self-conscious, and I certainly never let it stop me from doing what I wanted to; in fact, I remember thinking that it was quite funny. I don’t think that anyone meant any harm; they were just curious and one of the reasons is that seeing a disabled person going about their business and doing their thing is just not something you see happening at home. I certainly don’t have the authority to say that we are second class citizens but maybe we are a forgotten/unthought of bunch? One of my Facebook friends who is in a chair living in Trinidad said that the disabled population just isn’t visible, whether by choice or not. The infrastructure also doesn’t lend itself to be accommodating in a lot of instances. Just before I went down, I saw pics and reels of a new restaurant; the food looked delicious, and I definitely hoped to try it when I landed. Yanz was down there before me and she went to scope it out. Well suffice it to say that I scratched it off my list; it was small, tight (not very Optimus friendly) and included a step up to enter. At one of the parties, there were 2 levels and we decided to party on the bottom level. Luckily I had one of my personal elevators because there was no ramp and we had to go down 4 steps (I have an “elite” subset of friends who religiously pick me up and take me up and down steps if necessary whom I call my personal elevators :-)). I always feel nervous for them even though this is normelnormel if we go somewhere and have to negotiate steps. Well, in this fete, for the first time in however many years, J missed the last step and tripped. I have NO idea how he did that but managed to stay upright and not drop me…but somehow, he did! and the story ends here. I must say that on this trip when I went to the grocery with my mother, not a soul paid me any mind (at least, not that I noticed).

The restrooms at these fetes and on the road is another thing that I always need to think about. At the fetes that I attend, picture 3 or 4 trailers of 4 bathroom stalls each. Once again, I used my personal elevator because there were 4 steps to get to the stalls so the attendant let everybody exit and then he took me up. She then kept that trailer off limits to anyone who wasn’t with me. No complaints there at all. Now using the restroom truck J’ouvert morning is a harrowing experience because well…3 or 4 steps. Now, (for anyone who doesn’t know) J’ouvert is a parade through and on the streets of Port of Spain (the capital) so we were constantly on the move. The band had a music truck, a drinks truck and the toilet truck bringing up the rear – constantly on the move. We had to ask the driver to stop the toilet truck for a moment so that J could take me up the steps. I was so nervous because they were narrow and he had to pick me up like a lil child which is not normal at all! We made it though, and then going back down, he went backwards!!! He is my HERO; I’m still in awe at how he did it.

Happy to report that the entire parade route was a non-issue. Of course, I had to be vigilant especially when we pushed off at 4am. I had to keep my eyes open for ankles (I was in the thick of things, in the middle of the crowd) and potholes in minimum light. There was only one close call with the road and I can’t remember the details so all in all it must not have been that bad. One masquerader asked me to take a picture and she told me that she was really happy to see me in the band. Turns out that she is a Physical Therapist and was just really glad to see me out in the band and having a time in spite of my situation. We had a great time on the road and Optimus was a hit with just about everybody in the band (people I knew and those I didn’t) and he survived even though he had to be thoroughly cleaned after. Carnival 2023 is a wrap!

iFLY

I shared before that I went indoor skydiving in April. Since actually jumping out of a plane is not going to happen anytime soon, I’ll settle for the next best option. When OB and I went in April, I learned about their “All Abilities” program that occurs on one Thursday night every month.  Essentially, the facility is open to anyone with any disability to go fly to their heart’s content.  I tried to go in May but no one could tell me exactly when it was happening. I tried again another month but there were no available slots…sigh. All Abilities night is half the price AND they throw in a video (normally you have to pay extra for that) so I was really trying to take advantage of it. Fast forward to September and the Lumwai clan was in town and we decided to go back. It was my second time and it was just as much fun. By then they had added a virtual reality experience that we tried to add on but alas there was no availability that day. At that visit tho, I learned that October’s All Abilities night was on the 19th. i called early and booked my time slot…I wasn’t missing it that time and I definitely wanted to add the virtual reality experience as well.

I have to give props to the staff at the iFLY facility and the person who came up with the idea. The cost includes all the gear we need, a short training session and two  1-minute flights plus they thrown in the video for us (we’re VIP u know). I went by myself and I needed help putting on the suit and helmet and Austin, my instructor for the night, took care of me (and everyone else who needed help) without issue. Under normal circumstances, flyers would sit behind a tethered off area and when it’s your turn u walk up to the entrance of the wind tunnel and fall into it to start flying. Additionally, your single instructor stays with you to guide you as needed. On your second flight, they increase the wind speed to about 105mph and the instructor flies u in a circle while climbing vertically in the tunnel (intense experience). On All Abilities night, to accommodate us, they do not cordon off the area and anyone in a chair can roll right up to the tunnel entrance and then two instructors help to get the person off the chair, if needed, and into flying position (the 2 also stay in the tunnel with the flyer). Depending on the disability they will tie the person’s legs together so that they are controlled while in the tunnel and on the second flight, one of the instructors takes the flyer vertical but not in a circular motion.

when it was my turn I told my instructors that driving the scooter right up to the door didn’t make sense so I would stop at a point and walk with them the rest of the way. Well don’t you know that one of them asked if I would mind if he picked me up.  (absolutely not!!! and) being one to never say no to a “lifup”, I said “oh. do ur thing”. He picked me up like a little rag doll and in 2 2s, we were at the door. I was able to use the virtual reality helmet during my second flight and that made my night.  Allyuh. I eh go lie…I had fun but I am almost sure that the wind speed was less that night so my first flight was not as intense as before and just “meh” but the virtual experience during the second made up for it and just for those 2 minutes nothing beats the feeling of complete normalcy! I will continue to go on All Abilities night because, well it’s half the price – duh! but mainly because there are 6 different VR views and I want to try all – I also found out that it’s the 3rd Thursday of every month. Additionally, with any luck since I’m a repeat offender, they’ll start teaching me some tricks to do while in the tunnel.

i lost my voucher for my video, so enjoy a lil pic instead…

Pic of some who were there that night

 

Flying High

This post about my losing the ability to dance is old but still valid. I “dance” like only I can in parties and people dance with me and (in the past) Soca Scooter with no problem but I still yearn for the days when I could move freely without a thought. Additionally, ballroom dancing, Indian dance (a style I’d have loved to learn) and everything else is out. I have seen someone ballroom dance in a wheelchair so that is a possibility but I don’t use a chair (honestly I tried to use one on my own in a store once and absolutely failed) and I’m not convinced that ballroom dancing in a scooter is a possibility. As a result, I have to find things that I can do and hopefully discover that I enjoy.

One of the things that I want to do is skydive. Years ago, I had an opportunity to do it and I absolutely refused to pay $200 and sign my life away to jump out a plane that is howmanythousands of miles up in the sky. Maybe it’s because the MS has stripped away some things I want/like to do or maybe these days, my mindset is “life is too damn short and u only have one to live” but now? I want to go skydiving. The problem is that when it’s time to land, the jumper has to tuck their knees to their chest. Allyuh know that right at that moment, I will not be able to bend those legs and put them anywhere so best I don’t go jump out anybody plane.  Now admittedly, I haven’t completely explored if there are options out there for the disabled – I exchanged a few emails with one facility and those didn’t really get anywhere – so it’s something that I might get into at some point.

remember I shared that OB was here for a short time in April so I decided to take a couple days off and was thinking about what trouble we could get into and I remembered that there is an indoor flying facility in Atlanta. Essentially, you get the skydiving experience/feeling without actually jumping out of a plane. I called the facility to find out what options I had. In fact, my biggest concern was IF I’d be able to do it and then if I couldn’t fly would I be refunded (cuz it was pricier than I’d expected). I explained my issues as best I could and fella on the phone assured me that I’d be able to fly.  Okaaay then, well lehwe go.

the cost includes a crash classroom training session where u watch a short video and learn the different hand signals that may be used by the instructor who stays with u in the wind tunnel and all the gear u need to fly. So you don’t experience the moment that one would actually jump out the plane – the free fall, but you experience the “floating on air” sensation after the parachute is opened.  Everything happens in a vertical cylindrical wind tunnel in which air blows from below at 80 mph and faster. I entered the classroom all the while not worried but eager to explain my issues to whomever. I mean, clearly I’m not normal because I was in my scooter but surely they needed to know exactly what we were dealing with right? well, Ryan (the instructor) said very excitedly when he saw me approaching, “are u flying with me today?” I said yes and he said “great!!” but he made no moves to come talk to me.  Hmmmmm…We watched the video and he told us where to go to get our suits. At that point, I felt like I had to say something cuz getting in the tunnel and being thrown around did not appeal to me. I went over and started my spiel…”my hand curls up…I can’t stretch out this arm…blahblahblah”. As I spoke Ryan was looking at me as if he was just waiting for me to finish, and then he said, “I’m not worried about you in there. Not at all, u’ll see. trust me, u’ll be just fine.” I mentioned how i tend to put my faith in people in these kind of situations in my rock climbing post, so once again, i “gearsed up”. Allyuh guess what? He was right! He helped me walk up to the tunnel opening and I was on my own after that. Now he stayed in the tunnel with everyone to ensure that we were stabilised cuz we were all first timers but if someone had just walked up and seen me in there, they would have never guessed that I had anything going on.  I thought it would be more exhilarating but it was lots of fun nonetheless.

Afterwards I found out that iFLY (the name of the facility) offers an “All Abilities” night monthly. Turns out that one night every month, they offer a half price opportunity for people with all disabilities: “All Abilities Night at iFLY is a unique event that makes the dream of flight a reality for those in the special needs community”. Anyone with any disability who is interested in flying can book time and get to do so without issue. Guess who will be going back to take advantage of that offer? I missed the opportunity in April because I waited too long and the time slots that worked for me were sold out. I’ve been all over the site like white on rice this month so as soon as they announce the date in May, I’ll book my time.

I have a video of my experience but for whatever reason, i can’t get it to play so you just have to use your imagination to see me in that wind tunnel 🙂

Life is too short…live like there’s no tomorrow!

 

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