Falling

I haven’t talked about falling in a while and trust me it’s NOT because it hasn’t happened…the thing about falling is that when i trip (or whatever to cause the fall), i always try to “catch” myself to avoid – this is normal, i s’pose.  But the times that i actually fall is when i realize “shit – this is not going to work” and i just resign myself to hit the ground and hope that i don’t hurt myself or land on my face.

That happened one morning last week…i’m really not sure what the hell happened but i knew that the fall had potential to be a great disaster.  I think that I’ve mentioned before that I’ve noticed that it’s almost as if my legs need to warm up before they work “properly”, so who knows just how shaky I was that morning.  All i know is that I was somewhere between the porcelain goddess and the sink which had more stuff than usual around it and so there was no telling how the tumble could end.  I tried, I tried, I tried to hold on to something/anything to balance and then eventually, i said, “fuck it, i’m going down!”  It wasn’t as disastrous as I’d anticipated, but there was a helluva lot of noise.  My mother said (yes she’s back) that it was the fastest that she’d ever climbed stairs (she was downstairs in the kitchen and heard the noise).

By the time she got to me, I was already down – of course – and had decided that i was going to finish brushing my teeth before even bothering to try to get up.  And the end of it all, I only had a bruised thigh to show for it – could have been MUCH worse!

The Formula

it only took 8 months…but i think i’ve finally figured it out.  I always try to drink at least 6 glasses of water a day – i tell everybody that the only things that i drink are water and alcohol :-).  Anyhoo, so 6 glasses a day, so i figured i (my veins) was well hydrated.  WRONG!  obviously something wasn’t right because i would always have to get stuck so many times on infusion day.  but…i think that i’ve figured out the right formula….

I actually need to drink about 4 glasses the NIGHT before and then 6 more the morning of!  I did that the last 2x and there was no drama each time -the vein popped right up and blood was flowing ( ah lil slow, but that’s beside the point).

4 more shopping days before Christmas!!

Tysabri

I didn’t want to say this out loud before but I think that the Tysabri might actually be working.  I can see a slight improvement.  Trust me, I won’t be running any marathons anytime soon, but I am almost positive that there is a small improvement.  Now, I’m not sure if someone looking at me can tell if there’s a difference, but I can feel it, altho…

My mother surprised OB and G last week and came back up here for Christmas and i overheard her say to G some day, “but Stacey was walking real good this morning…”, a good friend came to see me for a brief 24 hr stint last week and by the end of the day that i’d picked him up at the airport, i was struggling but the next morning, he said to me, “…but A  A, where u running going?”  A few weekends ago, we went to do our Saturday ritual (get eyebrows done) and G was amazed at how well i was walking.

On all the occasions, i had been walking “normally” – well –  as normal as I can be.  It was always that in the mornings, I would struggle less than at the end of the day, but i definitely feel better and look better these days.  There may be a light at the end of this tunnel afterall.

hmmm, Christmas

I  realize that not only did having MS mess with my thanksgiving this year, it’s also going to mess with Christmas.  I’ve spoken about routines – managing my MS is all about routines; changing, adding, removing routines as you go.  I guess because it wsn’t this time of year, i never thought about the holiday routine – cooking up a storm on thanksgiving, shopping way too much for Christmas, making puncha creme, rum punch, sorrel and i can go on.

well…this year i cannot shop like i want to and it is putting a little (just a little) damper on my Christmas spirit.  I have to shop online – UGH

  • Altho I’m no big shopper, it’s not as much fun as going to the store
  • I’ll have to buy the specific item – there is no shopping around (altho one can argue that that’s a good thing – less $ spent)
  • Kinda limited to the one store – kinda sorta, other stores won’t catch my eye as I’m walking out the mall
but i guess it is what it is and there isn’t much that I can do about it.  Always have to keep the alternative in mind and that is, going to the mall and then getting depressed WHEN i can’t walk out!
I still hate MS!
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