Tag: walking disablity

Funny…

i always find it funny when other people can make jokes about my situation.  So i mentioned that i gave blood the other day.  It was a blood drive sponsored by the bank, so i’d emailed the coordinator 2 days prior with a couple questions (i’d never met the man before).  I walk into the room where they’ve set up and when i signed in, (same fella happened to be the one with the sign in sheet) he said to me, ur name is familiar…have we met?  So i told him that i’d emailed him a few days ago, bla blah blah…we engaged in ah lil small talk and i went on my way.

When i was done, i said goodbye to everyone and started my trek to the car (i swear that it was a 8 mile walk to the car)!  Now, whenever I’m walking (esp if it’s a tight space) and i hear someone behind me, I move to the side so that i don’t keep back anyone.  So…i heard someone coming up behind me, so i just moved over so that the person could go head…it was the same guy and as he walked by, he said, “boy Stacey…u not going to be winning any races or setting any records there huh!”

Now someone else might have been offended/get their panties all in a bunch – i thought it was funny as hell!  I laughed and i laughed hard!  As it turns out, we were heading to the elevator and he ended up having to wait on me to get to it 🙂

i always appreciate a good laugh/sense of humour.

Speak No Evil

When i started working at the bank, i was in a banking center.  I worked at many centers and they were all extremely busy.   Whenever things slowed down a bit, it was taboo for anyone to utter those words, “it’s kinda quiet in here” or “today’s been really slow”….ultimately if someone uttered those words, the “Nationsbank bus” would pull up and let loose hoards of customers…

I’ve been avoiding this for a while now – for fear that it might actually come true/be true…

I think my walking is getting worse.  

It’ll be 12 months on Tysabri on Friday; it’s working i s’pose – no additional scarring on my brain – altho, i haven’t had an MRI on my spine since the original one last year, so who knows what that might show when i go for 1 this year (i’m assuming that i’ll be sent to get 1).

Quite frankly, things are (feel) worse during the week than on the weekend – go figure!  I’m still trucking, but i still hate having MS too!

Things Went Well

Everything went well on Friday; nothing to report except that apparently i really do have tiny, rolling veins.  STEUPS!!  This time, I was stuck twice, in 2 different places, and then stuck AGAIN because they couldn’t get blood from that vein…go figure!  I was able to enjoy the weekend altho it started off shaky with that ass raping that Germany gave Argentina in the World Cup match on Saturday morning. 

I’ve never seen another MS patient suffering like me with walking troubles.  Any time i go to see my doctor at the MS Center, other patients are either walking normally or at the other extreme and are in a chair/using a walker etc.  I’ve never actually seen someone walking slow or dragging their feet or anything like i do – until last week Friday.  The chick was much worse than I ever was; it appeared that her legs were totally stiff and unbendable.  She didn’t use any walking aide as far as i can tell, but when she was leaving the infusion room for good, she held on to someone to leave.  I AM LUCKY!  I don’t think i can say it enough…I can’t imagine what she must go thru regularly – of course, i don’t know if she walks like that all the time or if she was having a bad day – but imagine walking (or trying to at least) and ur legs just don’t corporate with u and ur knees refuse to bend!  WTF???

I’ve said it before, I’ll say it again, MS really is a shitty ass disease!

Follow Me

Get the latest posts delivered to your mailbox: