Tag: waiting

Waiting Game

this last waiting game I’ve been playing is over!  I was contacted by the MS Center yesterday and have scheduled my 1st Tysabri infusion on 6/4.  The most surprising news?  The insurance company claims that they will pay 100%…when I exclaimed in bewilderment, the chick said, “yes that’s what they said, but u can call me before u schedule the 2nd one to confirm that they paid in full for the 1st one if u’d like.”  WOW!  who woulda thunk it…not me!

So…before starting the infusions, i have to be off of the daily shot for 2 weeks…since this process started, i have been slacking off taking the shots – i cyah lie.  So, I missed last week Thursday and Friday (the legs are the sites i hate the most), took it Saturday and completely forgot Sunday.  Yesterday morning, for whatever reason, I decided to do the right thing and take it.  F*CKIN A!!!  because of that, I couldn’t go in on 5/21.  (Since this is new and I’m not sure how I’ll react (side effects and all!), I want to go in on a Friday for the 1st few times.) 5/28 is out – won’t be in town…so I have to wait all the way till June!  That leaves me a whole week to continue with the bloody daily shot – F*CKIN A!!!!

On aother news…the Ampyra continues to work; still no side effects and walking almost like a champ! 🙂

Forward Progress

I called my neuro’s office today.  The prescription has been submitted to the pharmacy.  Of course there was an initial problem because my name was input incorrectly (WOW really?  I’m shocked) but it appears to be moving along.

I called the pharmacy to confirm…that chick (who of course said to me that she couldn’t find me when i told her my last name!) eventually found me when she opened her eyes to look and told me that Sheila (my case manager) will call me as soon as she has confirmed my benefits with my insurance company.  She stressed that i need to give them time to confirm with the insurance company (in other words, don’t call us, we’ll call u)

So as usual…as with anything MS related, i’m playing the waiting game once again.

  • Waiting to see what (and how) a new symptom might present itself and affect me – my life!
  • Waiting to see if i have additional scarring on my brain
  • Waiting and hoping that my medication is actually working and slowing the progression of this GD disease
  • Waiting to be approved by the insurance company to get drugs that will help me overcome of the symptom of a disease that I have (and dint ask for)
Geez!  nothing is ever easy…
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