To Tell or NOT To Tell…

I’ve said before that i really believe that my MS is temperamental.  I swear!  If I’m at home alone or around people i’m comfortable with – no problems (for the most part)…as soon as i’m out and about, around strangers – all hell breaks loose!  I stiffen up, i’m all shaky, unstable…ayeyayaye!  shit is never nice and simple…

Monday nite, I went to dinner…wobbled into the restaurant and as always, I feel like i have to explain when I’m following the host to a table (esp if I’m by myself) becuz i move so slowly, i tell the guy, I’m going to get there; it’ll take me a minute, but i’ll get there.  Of course, he sees me somewhat shaky and asks if I’m okay.  Anytime I’m asked that question, I say yes…no need to get into any long story.  But then he says, looks like there’s something wrong, did u hurt ur leg?  Crap!  did he have to ask more questions?  really?  This is a place that I frequent – ALOT – so I felt the need to tell him the truth, “i have MS so sometimes i stiffen up when I walk”…poor guy.  I think he got confused,  mumbled under his breath “so sorry” and got the hell out of dodge. 

It’s not that i want to make anyone uncomfortable or anything, but he asked me more questions – he should have just accepted my first answer and moved the hell on.

Last nite, I went to a friends’ house and ran into someone i know who hasn’t seen me in a while (we don’t keep in touch either).  I went into the office yesterday so i did more walking than i should have so by last nite, i was in a state….the conversations went like this:

him:  U limping…what’s up?  u okay?
me: wait a minute, u don’t know?  I have MS so sometimes walking is a problem
him: Nah!  Yuh lie!  i doh believe u…u joking

and he walked away…i heard later that he went to confirm with G and SD that i was telling the truth.  He honestly didn’t believe me.  Again, I don’t set out to make people feel uncomfortable or anything but sometimes they just don’t know how to react and sometimes the truth just isn’t necessary either.

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