Riding with Lyft cont’d

I wrote this yesterday but was only able to publish this morning…

Ohmyword. I’m writing this from a Lyft car right now. I published my last post at 1:00 this afternoon. I just finish talking about the fact that men don’t complain and now 5 hours later, I had the interaction below with ken, the driver:

He pulled up and I saw the look. I ignored it and said, “is it ok if I sit behind you?” He nodded said yes and, “what about that (pointing to bumblebee)? where u gonna put that?” I said “it’ll fold up and fit in ur trunk.” He said okay and pulled into a spot. As I went thru the motions of folding up bumblebee he oooohed and aaaahed at how he folded up but I knew that we would “have issues” when Ken started his steps to lock it in place and I could hear his grunts of frustration.
When Bumblebee was folded and locked, I said my usual “it’s a lil heavier than it looks ok?” But by then ken had already tried to pick him up and exclaimed, “this thing is heavy!” He tried again, “how u know I can pick this up?” I said “I don’t so I will get help if I need to”. He hoisted bumblebee a third time “this thing is heavy. Do u always do this? Suppose a woman comes for u?” Again I said ever so calmly, “yes I do this all the time. Like I said if u don’t want to deal with it I’ll get help.” (I didn’t say u can leave and I’ll get someone else…I was already running a little later than I’d planned) he said, “I don’t mind and I don’t want to damage it” and lifted it into the trunk.

Now this is what I meant when I said in my last post that people try to make nice after the fact. We drove in silence (which is no big deal and it gave me a chance to write) and when we got to my destination, he came out the car, took off his shirt (he had on a vest underneath) and said, “I have to get ready for this.” I heard him grunting by the trunk and he brought the scooter to me and said, “I never had to deal with one of these before. What’s it called?” I told him that it is a mobility scooter and I use it to get around. He said,”okay. Well I’m glad that I got you because now I know how to handle it. I never had to before. So is that it?” I told him that I had one more thing to do before I took off but that I’d do it. He said, “no. Tell me. I want to learn”I told him what to do, asked him if he’d close the door for me, told him thank you and scooted off.

Times like this I also wonder if I should rate the driver a “3”. I remember the first time I did that I got a message that Lyft will not pair you with a driver who’s rated a 3 or less. He tried to make up for all the initial comments at the end, but if I rate him a 3, it will guarantee that he and I will never have to deal with each other again!

Riding with Lyft

So if you’ve been reading this blog for a while, you know that I had to give up on my Stax4 dream because I stopped driving a few years ago. I believe that the last time I drove a car was may 2016. I miss driving to this day…especially fast and aggressively …but I digress…anyhoo, so I was thinking about buying an accessible vehicle when T-ster suggested that I use Lyft to get around instead of putting myself in the expense of a new car (that I rhelly didn’t want cuz I like small cars). Well allyuh, I never looked back. I eh go lie, I was nervous at first requesting a Lyft ride, but eventually I got over it and it was smooth sailing…it’s now been 3 years later and…well, a weird thing has started happening.

Now, I really haven’t had any bad experiences. I would say that 99% of the time, I walk the driver thru breaking down OP or folding up the ‘bee and we’re off…but these days, I eh go lie, I breathe a sigh of relief every time I request a car and I see that a male driver has been assigned. No one outwardly complains (sorta) but I see the doubt/trepidation/skepticism flutter across their faces when they pull up and see me…and the worst offenders are young black women. I’m not a judgemental person generally but on the lyft app? I am – the other day I cancelled rides three times (I had time to kill that day) just hoping to be assigned a male driver and also because I was thinking about my potential experience and basing it on how the driver looked. Understand – guys never complain and they always get out of their cars to help, without my asking or saying anything. Women? Not so much…they huff, puff, make lil comments (nothing rude or that make me feel uncomfortable) and then they try to make nice after the fact. Now don’t get me wrong, if someone doesn’t want to deal with the scooter or put it in their car or whatever, I have no problem cancelling the ride and sending them on their way but instead of just stating as such, women will ben an screw before or while we are going thru the motions to get the scooter in the trunk – once, I actually helped one put OP in her trunk; don’t ask me how I did it but I did – she was muttering and grumbling a little and I just helped so that we could move along. I don’t let whatever they say or how they act rub me the wrong way because I just don’t have time to make that a “thing” and please keep in mind that it doesn’t happen all the time or even the majority of the time. 

So of late, I’ve been wondering if I am being presumptuous by using the regular Lyft car. I say “regular” because they supposedly offer accessible vehicle rides too but I don’t use those cuz they have to be scheduled in advance (I leave here on a whim sometimes) and ultimately, either of my scooters will fit in any car trunk so I don’t NEED an accessible vehicle. But, by using the regular car, I’m making the assumption that the driver will be okay dealing with the scooter…is that wrong of me? Am I being too bol’face? Why should I assume that a stranger would just do whatever needs to be done? I actually talked to a driver about it – although I don’t know that the driver was the best one. HE had no problem with it and HE told me that HE viewed it as HE was making a difference in someone’s life and was helping someone who needed help and he was just doing what he’d hope that someone else might do for his daughter, his niece, his mother etc if they needed help.

hmmmm

Anyway, those thoughts have been swirling around in my head lately, although they haven’t stopped me from using Lyft when I need to…I am just a little wary sometimes.

And the “Winner” is…

Tysabri!  I’m sticking with Tysabri. 

Yeah there’s a possibility of PML, but at least i know that that exists and there is a plan in place to mitigate.  My feeling is that Gilenya is just too new and i’m willing to bet my last dollar that something is going to emerge that they didn’t anticipate a few months/years down the road.  I may lose that bet and with any luck i will, but u know how drugs go!  There already have been some things happening too… a few people have died including 1 person who died 24 hrs after taking their first dose – HELLO!  there is still investigation pending into whether the drug had anything to do with it but…

I’m not stupid, i know that there are risks with all drugs and death probably is the extreme case but i’d rather deal with the known risks of Tysabri than the unknown (for now at least) risks of Gilenya.  We (my neuro and I) talked about the 2 therapies and he was also somewhat against my starting Gilenya.  *side bar* Sometimes the way he talks about Tysabri tho, i wonder if he’s on the baord of directors or was instrumental in creating the drug.

Anyhoo…so i will continue to endure the games with my veins (got stuck twice yesterday), the MRIs every 3 months (did i ever mention that as far as I can tell, i have NO side effects from the Tysabri?) and the knowledge that i’m at a higher risk for development of a brain infection to stick with “the devil i know”.

And the "Winner" is…

Tysabri!  I’m sticking with Tysabri. 

Yeah there’s a possibility of PML, but at least i know that that exists and there is a plan in place to mitigate.  My feeling is that Gilenya is just too new and i’m willing to bet my last dollar that something is going to emerge that they didn’t anticipate a few months/years down the road.  I may lose that bet and with any luck i will, but u know how drugs go!  There already have been some things happening too… a few people have died including 1 person who died 24 hrs after taking their first dose – HELLO!  there is still investigation pending into whether the drug had anything to do with it but…

I’m not stupid, i know that there are risks with all drugs and death probably is the extreme case but i’d rather deal with the known risks of Tysabri than the unknown (for now at least) risks of Gilenya.  We (my neuro and I) talked about the 2 therapies and he was also somewhat against my starting Gilenya.  *side bar* Sometimes the way he talks about Tysabri tho, i wonder if he’s on the baord of directors or was instrumental in creating the drug.

Anyhoo…so i will continue to endure the games with my veins (got stuck twice yesterday), the MRIs every 3 months (did i ever mention that as far as I can tell, i have NO side effects from the Tysabri?) and the knowledge that i’m at a higher risk for development of a brain infection to stick with “the devil i know”.

To Do or Not To Do…

1/2 of dealing with MS (and i suspect any chronic disease) really is about making good, well informed decisions.  July was a blur to me…i was on vacation, OB was here, I was limin up a storm right thru.  I blinked twice and it was over – time really does fly when u’re having fun.  Anyhoo, so this past weekend, i decided i wasn’t going to do ANYTHING!  i was going to keep my ass quiet for the 1st time in a month and just stay home and relax…try to get over July.  Of course, errands and normal Saturday stuff doesn’t count, so when i finally woke up on Saturday, i jumped in the car and moseyed on down to the barber shop – i have to get my hair cut every 2 weeks, or i’m a stark, raving, mad woman.

The shop i go to is not close but i’ve been going to this 1 chick since 1995 and she does a fantastic job, so i’m not about to go in search of another barber.  The shop is in a mall; mind you, not the nicest mall around, but for whatever reason, whenever i go down there, it is ALWAYS PACKED!  On Saturday, I actually had to park the farthest away i’ve ever parked and was actually questioning whether or not i should bother – but again, i’m a stark, staring, mad woman, so i pushed through.   Men give women a hard time about going to the hair salon and how long it takes, but i swear it’s no different in a barber shop.  they get their beards groomed, their mustaches trimmed – it’s not as long a process, but it takes quite some time and Miriam (my barber) is quite good so there are always quite a few people in front of me on a Saturday – unless i go at the crack of dawn and that eh happenin!  Well even though i was just sitting waiting (i swear it was about 2 hrs on Sat), i was ah lil tired by the time my turn rolled around.  She knows about the MS and for some reason, that day she asked me where i’d parked.  When i told her, she said that she’d get someone to go get the car for me – i could have jumped into her arms and kissed her!  The thought of having to walk back all that way in the 9something degree heat was making me even MORE tired!  I’ve learned to accept help sometimes even when i really don’t need it!

I left the barber shop and went to lunch – a gal has to eat – especially when it’s at Eclipse.  As i was leaving Eclipse, i was still feeling a little tired, but had to go get the brows done…so i headed there.  Well i got there, got out the car, took 2 1/2 steps toward the place and decided that it wasn’t worth it…nice arched eyebrows vs bussin my ass in the place because i was tired?  i chose to not chance bussin my ass.  i was also supposed to make 1 more turn that evening – instead i entered my front door and set my alarm for the night because i knew i wasn’t going another place for the day, not even if they paid me!

P.S. the eyebrows are still not done- ugh!  maybe i’ll go tomorrow.

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