Forward Progress

I called my neuro’s office today.  The prescription has been submitted to the pharmacy.  Of course there was an initial problem because my name was input incorrectly (WOW really?  I’m shocked) but it appears to be moving along.

I called the pharmacy to confirm…that chick (who of course said to me that she couldn’t find me when i told her my last name!) eventually found me when she opened her eyes to look and told me that Sheila (my case manager) will call me as soon as she has confirmed my benefits with my insurance company.  She stressed that i need to give them time to confirm with the insurance company (in other words, don’t call us, we’ll call u)

So as usual…as with anything MS related, i’m playing the waiting game once again.

  • Waiting to see what (and how) a new symptom might present itself and affect me – my life!
  • Waiting to see if i have additional scarring on my brain
  • Waiting and hoping that my medication is actually working and slowing the progression of this GD disease
  • Waiting to be approved by the insurance company to get drugs that will help me overcome of the symptom of a disease that have (and dint ask for)
Geez!  nothing is ever easy…

The Experience

So, have u ever laid(n?) on a flat, hard surface completely still (head immobilized by a hannibal type mask) in a cold room (thank goodness they give u a warmed blanket) for 2 hours????  That’s what i did on Saturday!

What an experience…The good news is that i must have fallen asleep because when i came out of “the tunnel”, i asked the technician how long i was in there and she said 2 hrs…there was no way i would guessed 2 hours…so i must been asleep longer than i thought.  I knew that i fell asleep but it must have been for a much longer time period than i thought.  Luckily for me, the noisier things get, the more relaxed i get so the more that i can sleep.  I mentioned before that the machine is very noisy – they actually give u ear plugs – so it was singing a lullaby for me each time.

At some point my head started hurting and i would shift it ever so slightly but it got to a point where it was hurting so much it was actually burning!  I guess they didn’t put enuf padding behind it…i actually remember thinking, “shit!  I should never have shaved my head…if i had hair, at least that would have given me some padding back there”.  Luckily, they had to inject me with a dye before taking more pictures so she was able to put more padding behind it to make it more comfortable.

MRIs are not physically painful, except when they inject the dye…but i absolutely hate to have to do them because they really can be mentally EXHAUSTING!

Got the Call

the cost?

$350 out of pocket on the day and then the insurance company is going to cover 80% of the entire cost – ARGH!!!  i hate this insurance i have…i’ve had MRIs done before when i was with another insurance company and paid NOTHING out of pocket…SHEEEIIIIT!  guess i’ll have to get over it.

THEN!  the same idiot i spoke with earlier this week who asked me about my name called back.  Now today is Friday and I’m going in tomorrow for the MRIs…she called me back TODAY and said, “now there is a $350 patient responsibility for these procedures” *yes i already know, this is only the 3rd call from u people in 5 minutes*

Chick: how are u going to pay for that
Me: *not that i think that it’s any of ur business but*Ahm…my credit card…
Chick: So would u like to go ahead and do that now??

again…is she serious???  Why the hell would i pay for a procedure that i haven’t done yet???  these people are insane!!

Me: Can’t i pay tomorrow when i get there?
Chick: oh yes, i’ll just update ur file…

Oh yes u will!!!  WTF????  these people have me constantly using foul language…really????  who the hell pays $350 for a procedure that hasn’t been done yet????  Am i the crazy one here?  

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