MS: My Story with Multiple Sclerosis
Just a quick update today…
It’s in the mail! The medication is going to arrive on Wednesday…I will start taking it on Thursday. OYE! Hopefully I too will have good news to report after i start taking it. I eh go lie, I’m a little scared…what with its being a new drug and the side effects and all, but it is what it is.
so…i’ve posted the alcohol question on the website I mentioned before; www.patientslikeme.com. It’s interesting to see the responses I’ve gotten so far. They’ve been from people who were on the generic, 4-AP form of the drug for a while, people who’ve recently started and those who are actually taking Ampyra. They’ve also copied and pasted links and excerpts from material to substantiate their responses.
It appears that there are no adverse effects of the 2 together BUT considering that dizziness and increased falling may be side effects, probably don’t want to have the 2 in the system at the same time. I go back to my neuro on Tuesday; i’ll bring it up with him then…so we’ll see…more to come – maybe!
I’m laughing but it’s so NOT funny!
Wouldn’t u know it…it appears that no-one knows how Ampyra will interact with alcohol.
oh goody! Just my luck…I should have been in the test group. Did no-one think about doing tests to see what could/might have happened? Am i the only one who thought of this?
What the??!!??
so I called my mother last nite to give her my good news. We’re talking, just about the medication in general – side effects, how it will affect me, when will i see improvements, etc – when she says, “what about alcohol? can u drink while taking it?” wait a minute…i have NO idea!!! WDH??? i had no clue…how did i NOT ask my doctor that question? I asked him all kinds of questions and didn’t ask him the most important one!!!
Now, don’t get me wrong…i am no alcoholic, but i enjoy some of the finer things (vodka, caipirinhas) in life at times :-). who doesn’t?
I’ve called and left him a message..hopefully someone will get back to me sometime today! Ayeyayaye!!!!
I was approved for the new drug!!!! I will be getting a call soon from the pharmacy to set up shipment arrangements:-) Also my copay is $50/month but I qualify to get it at a discounted rate that was negotiated by the drug manufacturer of $40/month…WOOHOO!!!
