Well whadouknow. My phone rang on Wednesday and when I looked at the number, it was all 0s. Hmmmmm?!? I answered. It was a chick named Julie looking for me and wouldn’t u know it, she was a gilenya nurse. Really? So quickly??anyhoo, she was calling to get me started on the drug. Wow! Results haven’t come in yet, but someone is actually calling ME to get shit moving along? I was impressed.
- Right? WRONG!
All the peering the doctor did into my eye blinding me temporarily Friday? That wasn’t the eye test that I had to get done. Found out I actually have to go get a Macular Edema test…woulda been nice if someone had told me that. Geez!! She said that I could call my regular eye doctor to see if they’ll do it. Good. That’ll save me some heartache…well. Turns out they don’t do it so I have to find somewhere that it can be done. Steups!
…it’s now Friday
the nurse at the MSCA has NOT called me back…I just hung up from Julie. turns out the waiting period between the 2 drugs is 2-4 weeks. i stopped tecfidera last week wednesday…so, just have to get the 2 tests done and i’ll be on my way.