March 27th

is supposedly the day that BG12 is slated to be approved by the FDA.
I’ve been gone for a long, long time.  truth is i was in a writing funk.  I started a couple posts and just was never able to finish them and i just didn’t know what to talk about.  i’m not sure what happened…guess i need to be rejuvenated; hopefully things will look up from here.  
anyway, i went for my infusion on Friday and was told that we should be looking forward to 3/27/2013.  at this point, my fingers, legs, arms and eyes are ALL crossed because boy am i ready to be off Tysabri.  BG12 is somewhat new and of course, there are risks with that, but i’m ready to shake this “brain infection risk” monster off my back – i say “somewhat new” because apparently the drug (or some form of it) is already “out there” for use by people with psoriasis – it’s new for treatment of Multiple Sclerosis.  
Couple things about that brain infection:
  • The nurse practitioner i was talking to told me that apparently they have found that the average month within which a Tysabri patient develops the infection is 38; guess who just went for #37!!!
  • Also, it’s possible for you to have it and NOT DISPLAY ANY SYMPTOMS (y can’t i ever spell this word on my first try) – WDF?!?! she was actually able to say that with complete certainty because there was a patient at the MSCA like that.
happy, happy, joy, joy.  so you can understand y i am so ready to be off Tysabri and get into something else.  On top of which, since it’s an oral drug, i won’t have to deal with anymore needles and small veins and my blood not flowing (when they have to take blood) and…the list goes on.

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