I really do hate to have to make these kinds of decisions.
yesterday my phone rang; it was Cmus and he said that he’d seen something about “something called BG12 on CNN that has proven to slow down the progression of MS so i didn’t know if u knew about it, so wanted to share…”i instantly got excited because i thought that it was approved. Alas, it hasn’t yet but i couldn’t believe that i’ve reached the point now where i get excited because new drugs may be available to me – whoa! when did that happen, funny how priorities in ur life change as things happen.
even tho the drug companies have made progress over time, it’s unfortunate that all the available therapies are only for patients with the relapsing remitting form of the disease. there isn’t anything available for patients with the progressive form. I’m assuming (i don’t know) that they can take the other drugs that some of us take (Baclofen, Zanoflex etc) but there are no disease modifying drugs available for them. it’s time that someone/a company takes that on.
anyhoo, so more to come…u know i’ll let allyuh know how things progress.